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Tom's avatar

There is/are volumes of learning here and beyond. I have not had the fortune of being a parent, but I gave 100% of myself as a caregiver to my parents during their dementia journey. I was always an empathetic person, but years of being THE advocate for my parents, accommodated by FMLA, changed me forever. My parents were entering their 90s as I was entering my late 40s, the age difference explained by my adoption in the 1960s. What ensued over the following years was traumatic, devastating. I have so many ideas for improving caregiving, especially as it pertains to dementia. I even paid $10,000 to post a billboard over I-95 in Philadelphia for 3 months to call out the state of dementia care. Our culture in America falls short of that in some other countries as it pertains to caring for each other. I hope what I have learned can be documented in some way some day, firstly to improve caregiving, but also to effect a greater understanding of the sacrifices caregivers are making and the support they and their loved ones need to survive. For the rest of my days, I will see everything through an empathetic lens. ✊

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Elissa Strauss's avatar

thank you for talking to me about care! and now...onward, to getting all parents and caregivers the support, respect and curiosity they deserve.

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